Blog, Chronic illness, Fibromyalgia, Invisible illness

September is #Pain Awareness Month…

I have an illness that’s not visible.

Although you cannot see it

For me #fibromyalgia is real.

It causes me #chronic pain and #fatigue.

The pain can be debilitating and constant.

Some days it can get better or worse.

It’s altered my life choices

I’m not asking for sympathy

Just empathy

If you’ve never heard of fibromyalgia or know very little about it. Please take a few minutes to read this.

What is fibromyalgia?

Briefly, it affects the skeletal muscles throughout the body, causing varying degrees of pain.

The pain ranges in severity from day to day and it is affected by temperature,

stress

and the amount of physical activity carried out.

Fibromyalgia sufferers commonly experience a range of different types of pain.

The pain can range from a sharp stabbing pain,

an ache

and a burning pain.

Other symptoms that can be experienced are

fatigue,

poor sleep quality,

stiffness,

IBS,

headaches,

cognitive problems

“Fibro fog”,

depression,

dizziness,

anxiety

and painful periods.

Have a look at the NHS description of fibromyalgia for more in depth information about the condition.

Invisible Illness and Fibromyalgia 

One huge difficulty of living with fibromyalgia is it’s an invisible illness; others assume you are well because there is no physical evidence of being ill.

In my personal struggle with fibromyalgia this single fact has caused me the most stress over the 14 years I have had it.

You may ask, if you know someone or meet someone with fibromyalgia. What should I do?  Showing them compassion and learn about their symptoms can make a difference. Just taking the time to talk about it with them will help.

If you have just been diagnosed and are trying to find links to support groups and the online community. Have a look at the organisations below and also Facebook groups.

UK Fibromyalgia is a brilliant site that covers a wide range of information about fibromyalgia.

Also

Fibromyalgia Association  is a registered charity that provides information and help to sufferers.

Blog, Climate Change, Fibromyalgia

Hot summer heat…What does it mean for our future?

earth desert dry hot
Photo by Pixabay on Pexels.com

Our carbon footprint and the damage we are causing to the environment has been publicised widely.

This summer has been difficult for me to manage with wildly fluctuating temperatures, here in the UK. (If you don’t follow me, I have fibromyalgia.)

It’s been so hot in the UK this week; temperatures have been up to 36C.  I have no air conditioning. 

Me and my computer 💻  are completely frazzled.  I’ve decided to have a break and try again next week.

In the meantime….

I have some questions for you to think about.

Why is it hotter in the UK this year than I can remember in my lifetime?

Why have the records for heat been broken again this year in the UK?

I don’t think you have to look far to reach a conclusion to these questions:

I found a comprehensive answer on the Greenpeace website.

“It’s the use of fossil fuels – coal, oil and gas– that’s the main problem. Burning them has released carbon dioxide and other greenhouse gases which were locked deep within the Earth. Because of this, the amount of carbon dioxide in our atmosphere has rocketed. It’s now at levels not seen in millions of years, before humans even existed. Carbon dioxide traps heat from the sun and as a result our planet is now warming fast. 

The UK’s top ten warmest years have occurred since 2002, and this trend is set to continue.”

planet earth close up photo
Photo by Pixabay on Pexels.com

Climate change is happening now 

It’s a crisis facing the whole world

For us and future generations

We can do something now

By making changes to how we live

climate cold glacier iceberg
Photo by Jaymantri on Pexels.com

What can we do to help reduce our carbon emissions?

Have a look at this UN Carbon Footprint calculator.

What have I done?

I drive a hybrid car.

I’ve changed my energy tariff for a green energy deal.

I’ve stopped using plastic bottles for my water drinks and use a recyclable bottle.

I leave you with this question to think about….

What could you do to change your carbon footprint?

For more ideas have a look at the following links:

Friends of the Earth UK

Greenpeace UK